Fri 25 Jul 2008
As some of you know we took my daughter E in for her MRI yesterday, the day after we got back from our trip to PEI and New Brunswick. The girls were extremely well behaved on our trip to and from PEI, and this little trip to Sick Kids Hospital was no exception… at first. But as you will see the girls were not to blame.
We got to Sick Kids in plenty of time for the appointment, which was at two. They wanted us there at one to be on the safe side, and even earlier if we wanted a patch for E to numb the spot where she’d be getting a needle. So we showed up at twelve noon. Unfortunately they were running behind in the MRI department and didn’t see E until about five o’clock. So we had to improvise a whole lot of entertaining for the girls as we waited. But the girls were good sports and we all managed to have a good time in the waiting room, playing silly games, reading books, talking, and playing with other kids who were also enduring long waits. The girls had their puppets Hush Puppy and Lambchop which made it a bit easier.
To prepare for sedation, E was not allowed solids past midnight the night before. In the morning she was allowed Jello, water and Apple Juice until eleven o’clock, and nothing else after that. So by five o’clock she was starting to get a bit hungry and thirsty.
Finally at five a nurse saw her, asked her a few questions (such as “Do you have any metal in your head?” a question E found most amusing), and got her to change into a hospital gown. Once she was changed, we had to wait another forty-five minutes before beginning the sedation process.
Finally at about five forty-five we began the procedure. E was fearful of the needle required for the medication she was about to receive but in the end agreed to get up on the bed and lie down. Wendy the nurse gave her the smallest needle they had, which E later named “Pipsqueak”. It was through this needle that E received the sedative required to calm her, and then the drug to actually put her to sleep. (Um, not in the sense that animals are put to sleep. Although the thought crossed my mind as she was undergoing the procedure that mistakes happen in hospitals; I hoped this wouldn’t be one of them.)
E was not keen on the sight of the needle in her arm nor the fact that it was to be a semi-permanent fixture. She did not like the idea of being forced to sleep. She did not like the feeling of dizziness that the sedative provoked. She did not like the feeling induced by the other medication. She especially did not like being held down by the two nurses and myself that were required to prevent her from falling off the table and ripping the needle out of her arm. With her eyes three quarters shut and no longer able to talk she fought us every second of the thirty minutes it took for her to go to sleep. It required a second full dose of sedative to do the job, close to the maximum medication allowed for children. Several times Wendy the nurse called E a “fighter.”
“She’s a fighter,” she kept telling me, sounding increasingly amazed by just how much of a fighter E was as the minutes ticked by.
Apparently kids can have a “parodoxical” reaction to the medication, and become increasingly agitated instead of sleepy, and I was afraid this was happening to E. I think Wendy was a bit afraid too. I wasn’t allowed to talk for the entire time this was happening for fear of keeping E awake, so I had to endure E’s panicked flailing in silence. Wendy kept reassuring me that everything was okay but it was really hard to put E through this. It must have been horrible for her, because we were removing all control from her, wrapping her tight in blankets so she couldn’t move her arms, her own father forcing her down on the table, strange nurses sticking needles in her arm, and worst of all the medication in her system making her feel weird and helpless.
Finally I couldn’t remain silent any more. I said to Wendy, “She’s going to be awfully mad at me later.”
Wendy said, “She’ll be mad at me, not you.”
(In the end she was pretty much mad at all of us.)
She finally fell asleep after the second dose of sedative. They wheeled her off to the MRI, and told me to go get a coffee and a bite to eat.
“Keep a close eye on her,” I told them.
“We will,” Wendy told me.
I knew that she would be okay and that the procedure was necessary. Still, I had found the whole experience upsetting and couldn’t eat. So I paced the halls instead. Later K helped distract me by taking me on a tour of the main floor of the hospital, where we climbed stairs and rode yellow elevators that made you feel funny as you went up and down in them.
At about six forty-five the receptionist told me E was waking up in a recovery room. I went in to find her cheerful but drunk. At least, that’s how Wendy described her and that’s how she looked and sounded to me. I helped her get dressed while Wendy found her a wheelchair. She suggested we get her a bite to eat before driving home, so Lynda, K and I brought her to the main floor where Lynda gave her some Jello and a drink. She had a hard time putting the Jello in her mouth… she kept missing her mouth with the spoon.
And as the whole experience began to come back to her she began to get upset. It drove her crazy that she couldn’t move her body properly. We tried to keep her in the wheelchair to protect herself but she hated it. I had bought a sub to give me the strength to drive home (I hadn’t eaten all day either) but my timing was extremely unfortunate… I should have eaten earlier when I had the chance. I wound up carrying E to the Parking Garage, but she hated being carried even more than she hated being confined to the wheelchair. After having been bound and drugged against her will shortly before I didn’t blame her even as she pummelled my head and face repeatedly on the way down to our van.
In the van poor Lynda had her hands full trying to calm her down as I foolishly and perhaps selfishly finished my sub before heading out. The entire drive home E cried and railed against the health system that, in her view, had treated her so unkindly. At home we fed a slightly calmer E and watched her carefully as she staggered around the living room. We sat on the couch and had a good talk with her about the whole unfortunate experience, then put her to bed.
This morning she was still slightly uncoordinated but much more charitable toward Sick Kids, Wendy the Nurse, and Pipsqueak the Needle. She realizes that everyone was just trying to help her, and has even decided that she likes needles (!), especially Pipsqueak, which she wishes she had been allowed to keep. She actually professes to be looking forward to her next trip to Sick Kids for the results of the MRI, which we should get in a few weeks. At that appointment she’ll get to take the subway, which she loves taking.
Lynda and I (and K, I expect) found the entire experience rather trying, but of course it was E who got the brunt of it.
Hopefully soon we’ll find out that the experience was not only trying but pointless too… when the results come back negative.
Knock wood.
July 26th, 2008 at 7:22 am
You have to be cruel to be kind I guess.
Reminds me of when I had to hold down my little one when she got a needle in the leg a few years ago.
She gave me a look of complete betrayal - I mean I am her father, I’m not supposed to hold her down so the nurse can stick her with a needle.
And glad you are back at it Joe and really glad you had a good vacation.
Here is hoping everything is A OK for E.
July 26th, 2008 at 11:03 pm
um…wow.
i understand where you are coming from.
trying calming a 72 yo man who goes
in and out of unconsciousness.
i hope whatever E went in for comes
out with a clean bill of health.
*knock knock*
July 30th, 2008 at 1:27 pm
Thanks folks.
July 31st, 2008 at 3:28 pm
I had a similar experiance with middle when she broke her arm. They kept trying to get the neddle in her arm but kept missing the vein. After what seemed like two doezen tries and middle screamin blue murder she was finally down. Then the doctor started to manipulate her arm to set it. I didn’t know until after but they had put a security guard behind me because I was growling everytime my daughter whined in her sleep.
Tell you daughter I agree with her
September 30th, 2008 at 5:01 pm
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September 30th, 2008 at 5:12 pm
The results… apparently E’s brain is perfectly normal.
Whew!